HCI Research in Sensitive Settings: Lessons Learned from Technology Design and Ethical Challenges in Dementia

In this course, we will share concrete guidelines for HCI research in sensitive settings based on our research experience in dementia. We share how these lessons learned apply in sensitive settings regarding how designing for and with people with dementia has general implications for design and computing. First, we will provide real-world insights on designing technologies in sensitive settings by analyzing example cases from academia and industry. Next, we instruct designers and researchers in practical ethical conduct with stakeholders through hands-on exercises, such as facilitating informed consent and modifying common co-design activities for sensitive contexts.